Food Meds & MoreA new recipe book with a difference
MHRAFaulty Autopens recall
Journal WatchNovember 2014
We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language.
A charity based in the UK listening to people with diabetes and their carers and supporting their needs. The Trust is run entirely by voluntary donations and we do not accept funding from the pharmaceutical industry in order to remain uninfluenced and independent.
The Insulin Dependent Diabetes Trust (IDDT) is a registered charity and was formed in 1994. We are concerned with listening to the needs of people who live with diabetes, understanding those needs and doing our utmost to offer help and support. We not only want to help those who actually have diabetes but also their carers – the husbands, wives, partners and parents, indeed, all of us who ‘live with diabetes’. We recognise that when one person in a family has diabetes, all other family members are affected to a greater or lesser extent and they all have views and needs which may be different from the person with diabetes, but nevertheless are important.
The Trust was set up to look at some of the day to day difficulties of living with diabetes, the worries, fears and concerns that perhaps we don’t talk about at the hospital clinic- the ones that many of us experience and understand because we actually live with diabetes. As a charity, IDDT has a Board of Trustees and all our Trustees either have diabetes or have family members with diabetes. So we all know first hand that while diabetes doesn’t rule our lives, it is an important part of them. It needs care and attention, it can be a nuisance and it is not without it’s problems!
Report on the Anniversary Conference 2014
IDDT members came together to celebrate our 20-year birthday. Almost 100 people attended the Trust’s Anniversary Conference on October 18, at Kettering Park Hotel, in Northamptonshire.
Dr Laurence Gerlis spoke about ‘Fat v Glucose’ and keynote speaker Dr Charles Fox gave a presentation titled ‘Have NHS reforms made diabetes care worse or better?’.
Position Statement â€“ ‘pre-diabetes’
The term ‘pre-diabetes’ has crept into our language and there is debate about its use. People who are at risk of developing Type 2 diabetes are now being classed as having ‘pre-diabetes’ or ‘borderline diabetes’.
MBE Is Bolt From The Blue For Charity Chair
Jenny Hirst, co-chair and co-founder of the charity InDependent Diabetes Trust (IDDT) has run the very successful charity for over 20 years, was presented with an MBE by Prince Charles at Buckingham Palace.
Jenny successfully fought a ten-year battle against the pharmaceutical industry when she campaigned for the continuation of animal insulin following moves to switch people to genetically engineered insulin, which caused adverse reactions to thousands with the condition. The sustained lobbying led to government intervention and people with diabetes can still use animal insulin today.
Young diabetics ‘get worse care’
There is an urgent need for effective public health strategies to deal with diabetes, starting with more consistent NHS testing, says Jenny Hirst, Chair of the InDependent Diabetes Trust (IDDT).
People with diabetes not offered dietary advice
More than half of people with diabetes are not offered sufficient dietary advice upon diagnosis, according to a survey carried out to support the healthy eating message of this yearâ€™s World Diabetes Day.
‘20 Years of Independence’
IDDT formed in 1994 and published its first Newsletter in April of that year, so this year we celebrate our achievements over the last 20 years with the theme of ‘20 Years of Independence’. This is an achievement in itself. It is 20 years without accepting pharmaceutical industry or other funding which could be seen as biasing our position and the information we provide.
Olly’s £20 Challenge
Oliver Jelley, known as ‘Olly’ and his brother Ben helped raise £500 by completing a 14-mile run from Market Harborough to Northampton. The brothers ran along the Brampton Valley Way on Saturday, June 7, to raise money for the InDependent Diabetes Trust’s £20 Challenge.
Launch of Passport for Diabetes in Care Settings
The charity, the InDependent Diabetes Trust (The Trust), in partnership with the Institute of Diabetes for Older People (IDOP) and the English Community Care Association (ECCA), announce the launch of their new ‘Passport’ for people with diabetes in care settings.
The Passport is intended to be used in settings such as residential homes to provide carers with vital information about their clients’ diabetes needs.
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On June 21st 2012 the DVLA issued new guidelines aimed at making it easier for drivers with diabetes treated with insulin to understand the new driving rules to comply with the European Directive introduced in 2011.
LGV drivers unaware of the need to test if they are taking tablets
Driving and hypoglycaemia – what are doctors being advised to do?
The Association of British Clinical Diabetologists [ABCD] has recognised that the EU Directive on standards of driving in diabetes will have a significant impact not only on drivers with diabetes but also on the doctors who complete medical reports for the DVLA. The ABCD has clarified their response to the Directive and this basically advises doctors on their actions with their patients on the most important change – hypoglycaemia. [Practical Diabetes Vol. 29 No1] It seems sensible that people with diabetes know what advice their doctors are receiving, so below are the key points in the ABCD recommendations to doctors.
First ever mandatory care standards to improve the level of care of children and young people with diabetes
Announced in early April 2012, every child and young person with diabetes in England can expect an improvement in their level of care as a landmark funding agreement for paediatric diabetes services comes in to force.
The ‘Best Practice Tariff for Paediatric Diabetes’ sets out 13 mandatory care standardsfor paediatric diabetes service teams to meet. Providers who can prove they meet these levels of care will qualify for greater funding. Local services unable to achieve these standards will be supported to improve but face having their funding withdrawn if unable to reach the required level by April 2013.
IDDT can now take online orders for books via the IDDT Shop. We currently have 3 highly rated books for sale – Collins Carb Counter, Arthur Teuscher’s ‘Insulin â€“ A Voice For Choice’ and My Life with Diabetes â€“ 61 years of Carb Counting, by Tony Huzzey. All 3 are available at very competitive prices – and with free delivery*!
We also have a stock of cool boxes for carrying insulin…
*Unfortunately IDDT can only deliver books free of charge within the UK.
Animal insulins continue to be available – statement from Wockhardt UK
IDDT formed to maintain supplies of animal insulins, not only so that this choice of natural insulin remains available for everyone, but especially for the people who have adverse reactions to the synthetic human and/or analogue insulins. We never forget that this need still exists and we know that many animal insulin users worry about the continued availability of the animal insulin they need. Many are often wrongly told that animal insulins are no longer available.